Arshaan captures some of our best moments! 💖💖
Really is the most beautiful tine of the year! Surgeries done. casts off. standing nice and tall. lots and lots hope for the future. #Family #blessed
"Mama, I'm so thankful for the love Big Brother has for me" - Jahan We all had a beautiful holiday full of love, gratitude and immense faith for the future. ❤❤ #TheAdamBoys #TheJansensFoundation
Very honored to be this year's recipient of the GI Scholarship for education. #2ndTimeAwardee #doctoralgoals #bluejays
I've always found that anything worth achieving will always have obstacles in the way. When we set up The Jansens Foundation in Feb of this year, i was told "our disease was not profitable and no one would care about 26 cases around the world." But the more I learnt about jansens disease, the more I knew we had to get people to care. The fight was on! Today, a few months shy of our first year, we are super excited to announce our research team has been awarded the NIH grant for Jansen's disease!!! This means significant funding for the next 5 years for Jansen's disease! and a quicker path to clinical trial!! None of this could be possible without the efforts of this band of beautiful people!! I asked and they said yes to a mission that was so farfetched to seem real. But meeting after meeting, they brought ideas, ways, means, and believed that the impossible could in fact be possible. To Nadia Bodkin and Malay (our IT whiz) who continue to support us from afar, this road has been made easier by your wealth of knowledge and experience. To the warrior families we serve, we are honored to be in this together. To those who prayed, liked and shared our posts, we appreciate your unflinching support. I always wondered about God's purpose many times along this rare path, but I see it now as clear as day. We were meant to lead the way, to make the charge, and make a difference. #raredisease #fightingforacure #NIH #ClinicalTrials #MakingADifference #JansensDisease #thefightison #BoardMembers #TheJansensFoundation #jansenswarriors #heroupforjansens #Faith #Purpose #UpNext #FDA #Thankful
Little guy is loving his stand-in motorized wheelchair.