For Rare Disease Day on February 28, The Mighty teamed up with Global Genes to ask our communities what lessons they’ve learned after being affected by rare disease. Oftentimes, when people share their stories with illness, pity is the first emotion felt by the person listening or reading. These answers show that those affected by rare disease are not to be pitied. They may have difficult days, months or even years, but they are strong and resilient. In fact, rare patients and families are paving and fueling the way for research and awareness. We are proud to showcase our community members to raise awareness for all rare diseases.
The Jansen's Foundation is proud to share what we learned.