Sometimes we have to give up control and show our vulnerabilities in hopes that a greater good will come of it. Earlier this year, the Adam family gave videographers access to their day-to-day lives for a Discovery/TLC channel documentary. This video is a small segment of the episode that is set to air in 48 countries across the world. Our wish is that the entire documentary captures the immense hope we have for a cure and the love these boys share and bring to everyone whose lives they touch.
The Jansen's Foundation was invited to an executive-level reception hosted by BiotechTuesday and Mass Innovation Labs with the Center for Rare Neurological Diseases at the Massachusetts General Hospital.