28th February was proclaimed Rare Disease Day in the state of Nebraska! The Jansen's Foundation joined a band of eight rare disease groups to make a change at the State Capitol of Lincoln!

Juvenile Batten Disease, Hypophosphatasia, Achondroplasia, SIOD,  Lymphedema, craniosynostosis and Jansen's Disease were represented. The proclamation was signed by Governor Pete Ricketts.

Alone, we are rare. Together, we are strong!

Rare Disease Day Proclaimed in Nebraska