Every trip to Nemours brings us a new friend. Meet Roni, a little girl with a lot of spunk! Roni flew in from Israel to get her spine fused by Dr. Mackenzie. She's been here in America for two weeks and will return on Monday. The narrative of personal bravado connects us all! #RareWarriors #RareStrong #JansensDisease #morquio
This! 😚 #foreverfriends #TheAdamBoys #LittleLevi #thejansensfoundation
Sometimes the biggest battles are fought by the bravest heroes! #thesquadsback #jansenswarriors #TheJansensFoundation #LittleLevi
Always an interesting day! Glad we can laugh about it! 😊
These boys are giving the best Ortho team in the world a run for their money!!! ❤❤ #DreamTeam
It's #NationalSiblingDay! These 3 little guys, - Cade from Florida, Jahan from Nebraska, & Zacky from Australia - are not siblings! But they may as well be! Each of these boys have the exact same gene mutation H223r that causes Jansen's disease! What are the odds of getting this mutation? Well, let's just say you are more likely to win the lottery 10 times over than you are to have the Jansen's gene! How incredible! It is also amazing how similar in tenacity and spunk these 3 are. Can't wait for the day these 3 meet!
Disha Shetty is a freelance science journalist.