Laws alone cannot create justice for little kids facing unspeakable battles. Just people alone can bring justice in the corridors and behind closed classrooms where eyes can’t see.
But not all tough conversations lead to easy answers or neatly packaged solutions. This is especially true when dealing with rare disease.
I was three years old when my father pleaded with doctors: “My daughter’s bones are bending.” His words were ignored. After years of living in the dark and countless misdiagnoses, including polio and rickets, my parents had no choice but to problem-solve on their own.
What if your child is not feeling so Brave? Why do we prize bravery as the ability not to feel afraid?
The lessons Dr. Nizar learned as a child with a rare disease that she now uses as a parent to her own kids with a rare disease.
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Very excited to be speaking at this amazing event!! https://t.co/9TFA0AE1dF
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Thanks, friend! https://t.co/amGYvTAuBW
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RT @NicholasFerroni: Dear @Target, Since you are launching a “Back to School” sale in mid July, and seem to start it earlier and earlie… https://t.co/XS45Am8Bmk
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RT @RachelleM_Dixon: I am honored to be nominated for the #WEGOHealthAwards .https://t.co/p9L1zLqko8